Living Well With Dementia/LWWD/Tools/Emotions

Common Emotions Experienced by Families During Transitions

From: MAREPhttps://uwaterloo.ca/murray-alzheimer-research-and-education-program/

Ambiguity and ambivalence

• Uncertainty surrounding what to expect during the process
• Uncertainty surrounding what life will be like for the loved one following the move

Guilt and a sense of failure

• Families blame themselves for the move
• A sense of failure in not being able to continue to provide care for the person with dementia

Anxiety and stress

• Making arrangements for the move may be stressful, and pressure to make a move quickly or before the family is ready may exacerbate this stress

Grief, loss and sadness

• Families feel these emotions related to hat they themselves are losing, as well what they see their loved one losing because of the move

Powerlessness

• Families experience a loss of control and disempowerment when they are not included in decison-making process

Loneliness and a sense of isolation

• Families feel they are alone during the transition process

Anger and resentment

• Families may prefer to continue to care in the community, but may be unable to receive needed supports to do so
• Families may not understand the process or have too much expected of them during the transition process

Feelings of relief and peace of mind

• Families experience these emotions knowing that their loved one is now going to be caed for in a safe and secure environment.